Saturday, May 30, 2009

Death of a foodie.

When we first moved here to Pittsford one of the major draws was the local grocery store. It being the flagship store of the chain it is a veritable Taj Mahal, a palace of food. The blue cheese bin was bigger than the entire cheese selection at our local Schnuck's in Missouri. I was in heaven. It actually hasn't turned out to be the culinary mecca that I had dreamed of but it's not bad. For several years now I have tortured my family with the evening meal way too late because I can only seem to make elaborate dishes. I have stacks of cooking magazines next to my bed which I read cover to cover, even (and especially) the weird ads in the back. We got cable so that when I was laid up after my first surgery I could watch the Food Network and public television cooking shows. Those days are over. Le Foodie est mort.

Don't get me wrong. I still love food. I just can't eat it. The two rounds of pelvic radiation I've had have destroyed my gut. In addition to the really special bloody mucous I discharge a couple of times a day from the little bit of rectum I still have (why do they leave it there to do that? why not just seal the passage and put up a No Trespassing sign?) I have an ultra-sensitive digestive track. It's called radiation colitis (in my butt) and enteritis (everywhere else). A spinach walnut wrap I ate for lunch yesterday made it through in four hours. Collard greens whizzed through apparently completely unaffected by the digestive process. The speed with which vegetable matter is propelled through the tubing is also accompanied by large volumes of gas. Enough that if a weather balloon was attached to my stoma instead of the decorative, putty colored bag I'd have hit the jet stream by now and be somewhere over Greenland.

Well so what, right? Just a few more trips to the bathroom during the day. The bloating is horrible and diarrhea is still diarrhea even if it flows unimpeded into a bag at one's waist. It hurts. My gut doesn't suffer in silence either. Several times this week I was in an exam room with a patient when the stoma erupted with the most embarassing squelches. I slap my hand over my abdomen to quell it but as soon as I remove it the squelch finishes what it started. Like I said before, it's got to go somewhere.

You'd think I'd be losing weight with this since in addition I can't eat the volume I used to; I fill up quick. No, I manage to find the calories somewhere. there's no justice. If I have to have chronic cancer, why can't I at least look fashionably gaunt?

Wednesday, May 27, 2009

It's got to go somewhere...

You can only squeeze a zit for so long; it's got to go somewhere. This is my first post to the dark side. Yes, an overused cliche but a good one. This is where the bad stuff goes. I will tell none of my friends who read my blog of sweetness and light because they like me and think I'm a nice person. I started that blog to let friends and family in on my progress after my last surgery. I could ask for a casserole or two and be witty all at the same time. After a while I started writing stories of my family to entertain. Folks kept reading. I realized they liked my sense of humor, mostly upbeat, a little black. However, there is more coal, tar, black ooze from five years of ovarian cancer bubbling up that needs to go somewhere and not any place that my sister's kids are going to find it. Or my sister for that matter. none of my friends really need to know what I think about at 1:00 am.

So I throw this stuff out to the void, to you. I could keep it to myself, just write it down. Why post it? Because I know you are out there. I know there is someone like me struggling with the reality of dying young who still has to go to work and get kids off the bus and doesn't get to go on goddamned Oprah to talk about "resilience."

If you, a friend or relative, find this blog, don't read it unless you are not afraid to find out what this all has really done to me. Seriously.

This is the first volley. Didn't smell too bad actually. Just wait.